Early intervention is key to preventing chronic UTI

Urinary tract infections accounts for 1-3% of all GP appointments. Even for simple infections rates of recurrence are high:

  • Around 20-30% of patients don’t get better with initial antibiotic treatment
  • Up to 70% experience another UTI within a year.

Up to 1.6 million women in Britain suffer from chronic lower urinary tract symptoms. A significant number of men and children also suffer. But NICE guidance does not exist for chronic UTI and there is no quality standard for recurrent UTI.

Negative dipstick tests and mid-stream specimens of urines and the failure of short courses of antibiotics are for many persistent UTI sufferers the first step to a diagnosis of interstitial cystitis, painful bladder syndrome, urethral syndrome or overactive bladder.

But numerous studies have shown dipsticks and MSUs to be unreliable. Burgeoning evidence suggests chronic lower urinary tract infections are caused by untreated bacterial infections – not inflammation.

Patients get stuck in a chronic UTI loop.

“I am seeing increasing numbers of women (and some men) affected by chronic and recurrent UTI, both in my work as a GP, and in the Community Urology clinics. Many have had symptoms for several months or even years, and due to negative urine tests have often been assured that no infection is present. We desperately need to build consensus, and work towards a better evidence base, on how to recognise and treat recurrent / chronic UTI.”
Dr Jon Rees, GP Tyntesfield Medical Group, North Somerset, and Chair of the Primary Care Urology Society

the problem with tests to detect chronic urinary tract infections

Chronic UTI guide

Our chronic UTI guide evidences the problems with testing and gives advice on how best to help patients.
All the information is based on the latest scientific research. We worked with specialists and GPs to make sure we got it right.

Chronic UTI GP information for GPs (opens as PDF)

“Chronic and recurrent UTI are common conditions that profoundly affect a sufferers’ health and wellbeing. Inaccurate diagnostic tests and inappropriate treatments result in many patients remaining undiagnosed, inadequately treated or even receiving an incorrect diagnosis. This is a travesty because if recognised, properly tested for and appropriately treated, patients can frequently have complete resolution of symptoms.”
Mr Ased Ali, Consultant Urological Surgeon

Research into chronic urinary tract infections

Find the latest clinical research on chronic UTI.

About the Chronic Urinary Tract Infection Campaign – CUTIC

We work closely with healthcare professionals to help people affected by chronic UTI get diagnosed and then receive the best treatment and care.

We believe that chronic UTI sufferers deserve better testing and treatment that works. These goals shape our work:

  • Raising awareness about chronic urinary tract infection
  • Challenging current tests which fail to diagnose about half of UTIs
  • Gaining recognition and proper treatment guidelines for chronic UTI
  • Challenging the diagnosis of interstitial cystitis, painful bladder syndrome and urethral syndrome
  • Making effective specialist treatment for chronic UTI available to all.

More about our work.

Get involved

If you’d like to get involved with our work or have feedback on our chronic UTI guide please email us at contactcutic@gmail.com

"I was told that I had interstitial cystitis and that all they could do was manage my symptoms. This procedure made my condition far, far worse than I was able to cope with. In time, I lost my identity, my job and all of my confidence."

Kirstin, who works in the music industry, was admitted to hospital 24 times with UTIRead more stories

"This treatment, as clichéd as it sounds, has given me my life back. Having to plan trips and paths around toilet locations is incredibly draining, especially for somebody deemed to be in the prime of life."

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“I had not experienced any particular bladder problems until the onset of this bladder condition three and a half years ago. Several urine tests taken in the GP surgery and samples sent to the laboratory came back as clear apart from three tests that registered as ‘mixed growth’ and were interpreted as contamination. I was...

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