CUTIC – the Chronic Urinary Tract Infection Campaign – works to improve testing and treatment for chronic UTI sufferers.

Here’s how you can get involved:

Educate yourself

If you have a chronic UTI, you may have a reasonable understanding of its mechanisms and how it developed but if not then use our research page and other resources on this website to understand how current urine testing is ineffective and how a chronic infection is different to that of an acute UTI.  Do you have friends or family who are microbiologists, scientists or indeed clinicians – talk to them to help you understand bacteria, laboratory processes and how antibiotics target bacteria.

NHS Digital have data about the incidence of UTI treatment in hospitals across England from the mid 1990s onwards. You may also want to look at studies highlighting globally how many work or school days are lost to UTI or the cost of health diagnostics.

Another key area to understand is that of national guidelines for Urinary Tract infections and how, at present, they are unable to support those with Chronic UTI.  In England, the guidelines prepared by The National Institute for Clinical Excellence (NICE) and Public Health England (PHE) form the basis for clinical management of UTIs.  In Scotland The Scottish Intercollegiate Guidelines Network provide these guidelines.

All this helps to build a picture and your work can help CUTIC develop key campaign materials targeted to different audiences. Let us know what you discover so we can work together.

Whilst research papers can seem daunting, a good grounding in urinary tract infections and the failings of UTI diagnostic processes and guidelines will help you to advocate more confidentially to key decision makers, your GP or secondary consultant and build a vital groundswell of patient advocates speaking out about Chronic UTI.

Get chronic UTI on the agenda

Tweet or email these articles about chronic urinary tract infections, add something about your experience if you’d like to share, to as many of the following organisations as you can.

If you’re not online please write a letter reference these articles and your own experiences if you’d like to share them.

We’re asking for:

  • chronic UTI to be recognised as a medical condition
  • that the National Institute for Clinical Excellence (NICE) provide diagnostic and treatment guidelines to GPs and clinicians for chronic UTI
  • the education of GPs and clinicians so that there is awareness that dipstick and urine culture tests are proven to be unreliable as the primary diagnostic method for cUTI
  • the adoption of clinically-proven treatment regimes – that recognise the difference between a chronic and acute infection – to successfully treat sufferers of chronic UTI.

If you’re on Twitter use the hashtags:
#bettertestingforUTI
#chronicUTI 
You can find us on @cuticuk

Contact

@CMO_England
Professor Chris Whitty, Chief Medical Officer, NHS England

@NICEcomms
The body that make the medical guidelines for clinicians
Chief Executive, Sir Andrew Dillon
Email: nice@nice.org.uk

@RCPCHPresident
Royal College of Paediatricians, Professor Russell Viner, President
Email: enquiries@rcpch.ac.uk

Royal College of Physicians, Dr Andrew Goddard, President
@RCPLondon
Email: andrew.goddard@rcplondon.ac.uk

Royal College of General Practictioners, Professor Mayur Lakhani, President
@rcgp
Email: circ@rcgp.org.uk

British Society of Urogynaecology
Email: bsug@rcog.org.uk

@medicalwomenuk
Women’s Medical Federation, Dr Henrietta Bowden-Jones, President
Email: admin@medicalwomensfederation.org.uk

Victoria Derbyshire Show BBC
@VictoriaLIVE
Email: victoria@bbc.co.uk

The Lorraine Show ITV
@lorraine
Email: lorraine@itv.com

The British Association of Urological Surgeons
@BAUSurology
Duncan Summerton, President
Email: president@baus.org.uk

Public Health England
@PHE_uk
Email: phe-pressoffice@phe.gov.uk
Director for Health Protection and Medical Director, Professor Paul Cosford CB
Leading PHE’s work on quality and clinical governance
Director, National Infection Service, Professor Derrick Crook
The Director of the National Infection Service leads and directs the specialist reference and diagnostic microbiology health protection services provided by Public Health England, and advises PHE’s executive on strategy and policy for microbiology services.

@APPG_WH
The All-Party Parliamentary Group on Women’s Health
Email: APPGWH@mailpbconsulting.com

See how CUTIC supporters are making a difference.

Talk to your GP about chronic UTI

We’ve produced an explainer for GPs which you can print out and take to your appointment. It gives advice on treatment, explains the problems with testing and links to the latest research on chronic UTI.

Keep up to date with the latest news and campaign actions:

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